Therapy Areas: Hereditary Disorders
Cystic Fibrosis Foundation Awards Grants to Five Organisations Dedicated to Empowering the CF Community
23 July 2019 - - The Cystic Fibrosis Foundation has announced the recipients of its fourth annual Impact Grants, which provide funding to people with cystic fibrosis who are leading unique projects in their communities to help and empower people with the disease and their families and loved ones, the organisation said.
CF is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time, and ultimately causes premature death.
Thanks to improvements in treatments and care, outcomes for people with CF have improved dramatically, but managing the disease requires a complex and demanding care regimen and significant social support.
Advances in treatments and care led by the CF Foundation have added decades of life and unprecedented hope for the future for people living with CF.
Recipients will receive up to USD 10,000 in funding and are selected in consultation with the CF Adult Advisory Council, an external panel comprised entirely of adults with CF.
Recipients of the 2019 Impact Grants are:
Cystic Arts by Khloe's Hope is an art therapy YouTube channel that features lessons on drawing, painting, sculpting, needle crafting, jewelry making, and other artistic expressions to help people with CF and their caregivers of all ages work through the emotions that come with having CF.
Fall Risk: The CF Musical Comedy is a CF-based musical comedy bringing people living with CF together virtually in musical theatre through singing, playing instruments, writing music, or lending their voice for a speaking role. Participants will take part in arranging music for the show and recording a demo CD.
Health Advocacy Summit is a day-long conference, with ability to attend and interact virtually, that provides young adults with chronic and rare diseases with the support, knowledge, and skills to become strong advocates for themselves and their communities through discussion-based sessions and speakers.
sINgSPIRE Virtual Choir is a virtual choir expanded from the Breathe Bravely sINgSPIRE program where people living with CF receive music and voice assignments, connect through online group video rehearsals, and record their individual parts together to create a unified choral piece.
The Salty Life: A Cystic Fibrosis Magazine by the Salty Foundation is a print magazine dedicated to showcasing all demographics of the CF community and shining a light on important topics by sharing perspectives from children, adults, and families affected by CF.
Based in Bethesda, Md., the CF Foundation funds CF research and also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The CF Foundation is a donor-supported nonprofit organisation.